Seven

If seven is a perfect number, it’s been accomplished this fall: seven reading/launch events for All That Belongs and in its wake, a grateful and satisfied weariness. It’s been quite a year.

It was just ahead of my January birthday that I got the call from Turnstone Press saying they wanted to published the book, and since there was an opening in their fall list, we could — if I chose — aim for a fall release. That sounded overwhelming; usually there’s more lead time for the processes post-acceptance, even when the book is already written, but why not? I would make it a priority. So we did it, the entire team (editor, copy editor, designer, proofreader) and me bending into the required tasks.

Writing and publishing are no stroll between the roses. My first instinct when people tell me they want to write — whatever it may be — is to persuade them otherwise, which of course I don’t actually do because maybe they just have to, maybe it’s their vocation too, what do I know about their necessities? Or the story maybe only they can tell.  I’m not quite done with writing myself. But what I’m trying to say is that while there’s a great deal of joy in it — for me writing itself is mostly a pleasure — there are other parts that are more fraught.

unnamedThere’s the very competitive quest for readers, which begins with somebody saying Yes, we want to publish this. A quest that can never — statistically speaking — be assumed, unless one is famous. Another scary spot, at least for me and probably many writers, is that space just after the book appears and there’s nothing more to be done and it is what it is and then one wonders if it will live on for a while or languish in warehouse boxes? And then putting oneself out there in public events and on social media, inviting and announcing and hoping not to annoy by overdoing it and hoping people will come and hoping people will buy and hoping people will read. Hoping the first, perhaps only major review, will be okay. (It was.) It’s a vulnerable time. (And if I/we sound insecure, yes, that too.)

But. done for now. (Until spring, maybe in Ontario). And so I want to round off this year that I still can’t quite believe actually happened with saying Thank you to Turnstone for producing the book, then setting up the joyous Winnipeg launch, and subsequent readings in Saskatoon, Calgary, and Vancouver, and to friends in my childhood hometown of Linden for a truly delightful time together, and to the folks at the Mennonite Heritage Museum in Abbotsford and friends and family here in Tsawwassen and Ladner, and to the writers I was paired with at several of the events. Some were small gatherings, some large, and each had a story. (Including finding myself wandering around downtown Vancouver looking for the bookstore whose address I had typed wrong into my computer and thus thoroughly lost!) I’m grateful Agatha Fast let us use her art for the cover, which people are loving. I’m also grateful to Kerry Clare at Briny Books for the honour of being one of her fall picks. (Here a short interview she did with me.)

And grateful to you — you who attended or bought or suggested All That Belongs to your library or book club (including an invitation to meet you by Skype) or put under the Christmas tree for someone else or read. Or just generally shared my happiness about this year.

No amount of fear

Back from our road trip, I realized, retrospectively, that in nearly every visit with friends and family during those weeks, I talked about Lynch syndrome. No one had heard of it, so understandably the responses to my talk of it were muted, seemingly uncomprehending of my worries and thus not wholly satisfactory on an emotional level. But, like Coleridge’s ancient mariner, I kept at it, speaking of it again at the next stop on our itinerary.

Reflecting on this compulsive sharing, I have to conclude that this Lynch syndrome business has affected me more than I thought. Lynch syndrome is an inherited genetic predisposition to certain kinds of cancer, often manifesting relatively early in life, and no, I don’t have it. But my husband does.

The confirmation that he does was not a huge surprise, in light of his history of four kinds of cancer so far, though we’d never heard the name either until a cousin of his phoned to say their entire family had been tested and there it was, in nearly half their siblings and in those siblings’ families. Suddenly we saw H’s  family tree, beginning with his grandmother and then his mother’s line as well as one of her sister’s and one of her brother’s and their children and the high predominance of cancers, in a new way. What we’d occasionally remarked on anecdotally was a family tree with blinking lights all over it, the latest our 56-year-old niece who died this year of a brain tumour, she the daughter of H’s sister who passed away of cancer some years ago. We took what we knew of the family tree to his oncologist and a test was readily arranged, and then we had the results, the marker. Which means that if they wish, our three children can be tested as well. (It doesn’t skip a generation, but children of a carrier have a 50-50 chance of being carriers as well.)

But all this is a long introduction to a book I wish to recommend. I heard about it “by chance” when I turned on the car radio while doing errands. Ami McKay, well-known author of The Birth House and The Virgin Cure, has a new book out: Daughter of Family G: A memoir of cancer genes, love and fate. As soon as I got home  I placed a hold on it at the library, and it was waiting there for me during our road trip, so perhaps that too is why I was bringing it up at every stop.

I’ve read the book now and it’s interesting and well written. McKay is part of the original family that a pathology professor, Dr. Warthin, tracked when her great-great aunt, Pauline Gross, a seamstress, confided that she expected to die young, like many others in her family. Dubbed Family G, this became the longest and most detailed cancer genealogy studied in the world. Dr. Warthin posited that there was a familial connection, though not all his colleagues were convinced; they felt the causes of cancer were external. Unfortunately the study was used in service of a toxic eugenics environment in the 1930s that proposed such “lesser” folk shouldn’t have children. Eventually a Dr. Lynch and others discovered the genetic particularities that make it a syndrome. And fortunately, alongside, early detection and treatments for cancer have also advanced.

Ami McKay juxtaposes the historical narrative of the syndrome with the stories of various family members as well as her own story. She tells us early on that she tested positive as a carrier, though at the time of writing she’s still cancer free. There’s a thread of suspense as well, as we don’t know until late in the book whether her eldest son, now old enough to be tested, is positive or negative.

The book was interesting, yes, but tough to read as well. But satisfying too, in the resonance I felt with both McKay’s fears and her approach to life in spite of. Sentence by sentence she plucked at what I was feeling as a mother, or perhaps anticipating. “Even though I’d told myself a hundred times over it would probably turn out this way, I’m completely devastated….” she writes about hearing the results of her test. “I now live in an unsettling state between wellness and cancer.”

She decided to take science’s offer to “glimpse” her future, she says. But science didn’t show her “how to live with” what she saw. For that she drew on the inspiration of various similarly affected people in her family line.

Information is power, science says. It saves lives.

Yes, absolutely it does.

And our stories keep us whole.

She remembers her grandmother Tillie’s favourite saying: “all the flowers of all our tomorrows are in the seeds we plant today.” “If you can believe that one seed you’ve sown, one deed you’ve done will flourish after you’ve gone, then you’ve beaten the curse.”

I didn’t choose to be born with a genetic mutation any more than I chose to have curly hair or hazel eyes, or the likelihood of having lots of freckles, or the predilection for salty over sweet. But I sure as hell can decide which character traits from my ancestors I wish to embrace. Courage, fearlessness, persistence, kindness, a dedication to telling the truth–these are the things I choose.

But my very favourite line is this one:

No amount of fear can ever make us safe.

 

 

Road trip diary (# 7)

On the Coquihalla Highway

This will be our longest day of driving, and our last, and this the 7th and last diary post too. (Seven being a perfect number and all.) We decided to drive the Water Valley (near Calgary) to Tsawwassen (near Vancouver) stretch in a day; we two old horses are smelling the taste of home (sweet home)!

In terms of All That Belongs, yesterday was a great day. We drove from Red Deer to Linden for an early afternoon coffee and reading. There were fourteen of us around a long table at Country Cousins restaurant, enjoying pie and conversation. I grew up in Linden and remain connected to a few people there, as well as in nearby Three Hills. Eunice, my longest friend (with mutual Linden origins) and a dedicatee of the novel, drove down from the Edmonton area.

We went around the circle and everyone introduced themselves and said why they were there — connections in other words. This was fun, for the memories it provoked. Then I talked about the book a little and read a few pages, and of course I just happened to have some along to sign and sell.

In the evening, I was privileged to participate in the Flywheel reading series at Pages on Kensington in Calgary. A good crowd assembled. I was impressed with the energy in the room. I think it’s wonderful when bookstores partner with writers in this way. The other readers were Kate Flaherty, Laura Swart, Jacqueline Turner, and fellow Turnstone author, Su Croll, with her new book of poetry, Cold Metal Stairs, about her father and lewy body dementia.

Then it was on to my brother John’s, where we stayed early in the trip. We talked till midnight or so and in the morning Barb sent us off with a hearty breakfast of bacon and Ruehrei, which is a kind of scrambled egg but with flour in it. Like cut-up pancake. We all grew up with it. She said her mom paired Ruehrei with sardines, but even as a child she thought this a bad match!

Now here we are, curving through rock and pines, and soon we’ll emerge to Hope and the Fraser Valley, and we’ll stop for a sandwich, and then drive the final kilometres. My heart and mind are full of gratitude for the past two weeks, and also for all of you who have read along.IMG_7342